by Asmaa Javed | Mar 21, 2025 | News
Registration is officially open for the ECD Patient & Family Gathering 2025, a fantastic opportunity for Erdheim-Chester Disease (ECD) patients, caregivers, and families. This year’s gathering, in Barcelona on May 26, provides an invaluable opportunity to hear...
by Asmaa Javed | Mar 21, 2025 | News
In a recent short video, Mark Anderson shared an inspiring message encouraging viewers to support the Erdheim Chester Disease Global Alliance (ECDGA). His message underscores the importance of the ECDGA’s mission to assist patients, advance critical research, and...
by Steven May Jr | Jan 23, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce that nominations are now open for the prestigious Mark Heaney Memorial Award for Awareness. This annual award commemorates the significant contributions of Dr. Mark Heaney, a renowned...
by Steven May Jr | Nov 25, 2024 | News
https://www.erdheim-chester.org/wp-content/uploads/2024/12/IMG_7996-copy.mp4 In a recent short video, Mark Anderson shared an inspiring message encouraging viewers to support the Erdheim Chester Disease Global Alliance (ECDGA). His message underscores the importance...
by Steven May Jr | Aug 7, 2024 | News
Represent your country, your state, or your fight in our Virtual Run/Walk/Roll! By wheelchair, bike, or other means, come join us in this virtual event held during ECD Awareness Month (September 9-30). Register today as a part of a team or as an individual....
