by Asmaa Javed | May 12, 2025 | Insurance and Financial Assistance
Social Security Disability Insurance (SSDI) or “Disability” provides monthly payments to people who have a disability that stops or limits their ability to work. ECD is on the SSA Compassionate Allowance list that is meant to reduce the waiting time to reach a...
by Asmaa Javed | May 6, 2025 | News
Why Early Diagnosis Matters in Erdheim-Chester Disease: Marc’s Story Being diagnosed with a rare disease like Erdheim-Chester Disease (ECD) can be overwhelming. For many, the path to finding answers is long, confusing, and often marked by years of uncertainty. But...
by Asmaa Javed | May 2, 2025 | Webinar Recordings
The Leukemia & Lymphoma Society offers a free service called the Clinical Trial Support Center (CTSC) to help blood cancer patients, caregivers, and healthcare professionals find potential clinical trials and overcome enrollment barriers. This webinar will...
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Information Specialists offer free, one-on-one education, psychosocial support, and advocacy for blood cancer patients, caregivers, and families. They cover disease and treatment options, clinical trials, mental health support, and treatment team communication.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Overview of the various education resources and support services provided to patients and their families and the healthcare providers that care for them.
