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Italian Scientists Win Grant from Grassroots Louisiana Non-Profit

Italian Scientists Win Grant from Grassroots Louisiana Non-Profit

Dec 31, 2016

The ECD Global Alliance awards Erdheim-Chester Disease research grant for new treatment possibilities using the RCCS™  Bioreactor.
Governor Bel Edwards Proclaims Rare Disease Day in Louisiana

Governor Bel Edwards Proclaims Rare Disease Day in Louisiana

Dec 31, 2016

Erdheim-Chester Disease is one of 7,000 rare diseases supported by the Louisiana proclamation.
Mayor Roberts proclaims Rare Disease Day in DeRidder

Mayor Roberts proclaims Rare Disease Day in DeRidder

Dec 31, 2016

Erdheim-Chester Disease is one of 7,000 rare diseases supported by the local proclamation.
Culver’s of Highland Supports Rare Disease Day

Culver’s of Highland Supports Rare Disease Day

Dec 31, 2016

Local rare-disease patient organizes fundraiser to raise awareness of Erdheim-Chester Disease in Indiana.
New Care Centers for Erdheim-Chester Disease Patients Support Patient Access

New Care Centers for Erdheim-Chester Disease Patients Support Patient Access

Dec 31, 2016

The Seattle Cancer Center Alliance and Toronto’s Mount Sinai Hospital join the ECD Care Center network.
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