by admin | Oct 27, 2025 | News
A new study from Memorial Sloan Kettering Cancer Center highlights the promise of ulixertinib, a targeted therapy drug that blocks ERK, for treating certain forms of histiocytosis, including Erdheim-Chester Disease (ECD). Led by Dr. Eli Diamond, a member of the ECDGA...
by admin | May 29, 2025 | Social Posts
During the 2025 ECDGA Medical Symposium in Barcelona, physicians from around the world shared their latest findings and research focused on Erdheim-Chester Disease. In this photo, one of our participating doctors discusses emerging insights and ongoing studies that...
by admin | May 29, 2025 | Social Posts
Here is the group photo of the doctors who participated in the 2025 ECDGA Medical Symposium in Barcelona. These physicians and researchers represent the global collaboration driving forward the science, diagnosis, and treatment of Erdheim-Chester Disease. We are...
by admin | May 27, 2025 | Social Posts
Members of the ECDGA Medical Advisory Board and the Board of Directors came together during the Celebration Dinner at the 2025 Patient and Family Gathering in Barcelona. This moment reflects the collaboration and dedication of those working behind the scenes to...
by admin | May 27, 2025 | Social Posts
During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. This honor is given to individuals who embody the spirit of compassion, support, and advocacy within the Erdheim-Chester Disease...
