by admin | Jan 30, 2020 | Community & Support
For many patients, pain and fatigue are a constant reminder of having Erdheim-Chester Disease. Pain and fatigue can occur in ECD patients regardless of the presence or absence of BRAF mutations. These symptoms may be seen in newly diagnosed patients as well as those...
by admin | Dec 28, 2019 | News
Yet another year is coming to a close! We are grateful to the ECD community for continuing to support the organization in its mission to serve families around the world. With the help of countless donors, volunteers, and medical professionals, the ECDGA has been able...
by admin | Oct 23, 2019 | Community & Support
We are 10 YEARS STRONG!! The ECDGA is raising funds for the future and we need your help! We ask you to request 10 of your friends or family to donate $10 each for a 10-week celebration! From October 10 to December 12, the 10-10-10 event will be our...
