Ziggy the Zebra is back with a special challenge for Erdheim-Chester Disease Awareness Week—wear your stripes!
By putting on stripes this week, you’re showing solidarity with the ECD community and helping raise awareness of this extremely rare disease. Every striped shirt, scarf, tie, or ribbon sparks conversations that can lead to greater understanding, earlier diagnoses, and more support for patients and families worldwide.
The Erdheim-Chester Disease Global Alliance (ECDGA) is dedicated to awareness, support, education, and research for ECD. With your help, we can make this rare disease visible and let patients know they are not alone.
Join the challenge:
- Wear stripes this week.
- Share a photo or video.
- Use your voice to spread awareness.
Together, we can make a difference—one stripe at a time.

