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7th International ECD Patient & Family Gathering
January 11, 2019 @ 8:00 AM - January 12, 2019 @ 5:00 PM
Location: Milan, Italy
2019 Patient & Family Gathering Schedule of Events
All patients and loved ones interested in learning more about ECD and meeting other families are encouraged to attend the following events. The registration fee for the 2-day event includes access to all conference sessions, reception dining, as well as lunch and light refreshments during conference break times. The following meeting times are subject to change.
All events will be held at
IRCCS San Raffaele Scientific Institute
Vita-Salute San Raffaele University
Via Olgettina, 60
I-20132 Milano – Italy
| DATE | TIME | EVENT | DESCRIPTION |
|---|---|---|---|
| Thursday July 11, 2019 | 3 PM TO 5 PM | Group Activity | A group activity may be scheduled for this time frame to allow more social time for families in attendance. This opportunity is still under consideration and will be announced once plans are firm. |
| Thursday July 11, 2019 | 6 PM to 8 PM | Welcome Social | All event attendees are welcome to attend this social event to encourage connections between the families and medical professionals. Hor d’oeuvres will be served. |
| Friday July 12, 2019 (Registration 8 – 9 a.m.) | 9 AM to 5 PM | Patient & Family Gathering | Medical speakers experienced in ECD treatment will present the latest ECD care information to families and other treating physicians. |
Hotel & Lodging
Hotel Rafael is the recommended location for your event lodging. This hotel is conveniently located across the courtyard to the hospital’s meeting spaces. There is no room block contracted by the ECDGA for this hotel; therefore, we recommend booking your room as soon as possible to ensure room availability. Follow the hotel’s website for more information and to make a reservation. http://www.rafaelhotel.it/en
Additional Visit Information
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Media tag: #ECDGA19
Attendee Experiences
– Leretha R. Thomas, ECD Caregiver
“I have been in health care for over 20 years and have never seen or experienced such a caring and devoted group of health care professionals and volunteers!”
