9th Annual ECD Medical Symposium Seattle, WA
Symposium Attendees Seattle Group Picture 2024
Symposium Summary
Approximately 42 medical professionals from 10 countries attended the 2024 Annual ECD Medical Symposium. 18 oral abstracts were presented, along with an additional 5 poster presentations. As invited speakers, Gordon Starkebaum, MD, delivered a talk titled “History of Erdheim-Chester Disease,” and Veen Shankaran, MD, presented a talk on “Addressing Financial Barriers to Oncologic Care.” An evening reception provided time for discussions supporting current and future collaborations among this highly knowledgeable group of physicians and scientists, all interested in learning more about Erdheim-Chester Disease.
Programs with Symposium Agenda
Agenda
| Presenter | Presentation Slides | Video |
|---|---|---|
| Paul C. Hendrie | Opening Remarks and Welcome | No video |
| Gordon A. Starkebaum | History of Erdheim-Chester Disease | No video |
| David Pottinger | Patient Reported Health-Related Quality of Life among Individuals with Histiocytic Neoplasms: Results from an expanded cohort and longitudinal assessment | No video |
| Francesco Pegoraro | Long-term outcome and prognosis of 69 patients with mixed ECD and LCH | No video |
| Julien Haroche | Cluster Analysis Unveils the Clinical Spectrum of Erdheim-Chester Disease | No video |
| Francesco Pegoraro | Pediatric ECD: clinical characterization and long-term outcome of 24 cases | No video |
| Veena Shankaran | Addressing Financial Barriers to Oncologic Care | No video |
| Jithma Abeykoon | Outcomes of Histiocytic Neoplasms Treated with Selinexor and Choline Salicylate | No video |
| Eli Diamond | Mirdametinib for tumorous and neurodegenerative histiocytosis | No video |
| Adam Kessel | Local Disease Control in Patients with Erdheim-Chester Disease treated with External Beam Radiation Therapy | No video |
| Brinda Shukla | Patterns of Research Publications in ECD: A Call for Collaborative Efforts | No video |
| Fatemeh (Mina) Dehghani Firouzabadi | Central Nervous System Involvement in Erdheim-Chester Disease: A Prospective Magnetic Resonance Imaging Study | No video |
| Jerome Razanamahery | CSF neopterin and inflammatory cytokines in neurohistiocytosis | No video |
| W. Oliver Tobin | Central Nervous System Crystal-Storing Histiocytosis | No video |
| Benjamin Durham | ARAF Mutations Drive Histiocytic Neoplasms In Vivo and Provide Insights into Cellular Origin | No video |
| Oshrat Hershkovitz-Rokah | The Effect of Methylation on the let-7-BCL2L1-BCL2 Axis and the Potential Use of BH3 Mimetic Drugs in Histiocytic Neoplasms | No video |
| Mitali Sen | A Multi-Center Study of Autoimmunity in Rosai Dorfman Disease | No video |
| Alma Oskarsdottir | Unique Cytoplasmic Pattern of Cyclin D1 Immunostaining Distinguishes Erdheim-Chester Disease with MAPK Pathway Mutations from Reactive Histiocytic Infiltrates | No video |
| Vyshnavi Rallapalle | Systemic Xanthogranuloma or Erdheim-Chester Disease: Time to revisit the nomenclature? | No video |
| Fatemeh Dehghani Firouzabadi | Orbital Involvement in Erdheim–Chester disease | No video |
| Astrid van Halteren | Histological evidence of MAPK pathway activation across all subtypes of adult orbital xanthogranulomatous disease irrespective of the presence of pathologic mutations | No video |
| Paul C. Hendrie | Closing Remarks and Future Plans | No video |