9th Annual ECD Medical Symposium Seattle, WA

Paul Hendrie, MD, PhD
Fred Hutch Cancer Center & UW Medicine
Seattle, WA USA
April 14, 2024

 Symposium Attendees Seattle Group Picture 2024

Symposium Summary

Approximately 42 medical professionals from 10 countries attended the 2024 Annual ECD Medical Symposium. 18 oral abstracts were presented, along with an additional 5 poster presentations. As invited speakers, Gordon Starkebaum, MD, delivered a talk titled “History of Erdheim-Chester Disease,” and Veen Shankaran, MD, presented a talk on “Addressing Financial Barriers to Oncologic Care.” An evening reception provided time for discussions supporting current and future collaborations among this highly knowledgeable group of physicians and scientists, all interested in learning more about Erdheim-Chester Disease.

Programs with Symposium Agenda

Agenda

PresenterPresentation SlidesVideo
Paul C. HendrieOpening Remarks and Welcome No video
Gordon A. StarkebaumHistory of Erdheim-Chester DiseaseNo video
David PottingerPatient Reported Health-Related Quality of Life among Individuals with Histiocytic Neoplasms: Results from an expanded cohort and longitudinal assessmentNo video
Francesco PegoraroLong-term outcome and prognosis of 69 patients with mixed ECD and LCHNo video
Julien HarocheCluster Analysis Unveils the Clinical Spectrum of Erdheim-Chester DiseaseNo video
Francesco PegoraroPediatric ECD: clinical characterization and long-term outcome of 24 casesNo video
Veena ShankaranAddressing Financial Barriers to Oncologic CareNo video
Jithma AbeykoonOutcomes of Histiocytic Neoplasms Treated with Selinexor and Choline SalicylateNo video
Eli DiamondMirdametinib for tumorous and neurodegenerative histiocytosisNo video
Adam KesselLocal Disease Control in Patients with Erdheim-Chester Disease treated with External Beam Radiation TherapyNo video
Brinda ShuklaPatterns of Research Publications in ECD: A Call for Collaborative EffortsNo video
Fatemeh (Mina) Dehghani FirouzabadiCentral Nervous System Involvement in Erdheim-Chester Disease: A Prospective Magnetic Resonance Imaging StudyNo video
Jerome RazanamaheryCSF neopterin and inflammatory cytokines in neurohistiocytosisNo video
W. Oliver TobinCentral Nervous System Crystal-Storing HistiocytosisNo video
Benjamin DurhamARAF Mutations Drive Histiocytic Neoplasms In Vivo and Provide Insights into Cellular OriginNo video
Oshrat Hershkovitz-RokahThe Effect of Methylation on the let-7-BCL2L1-BCL2 Axis and the Potential Use of BH3 Mimetic Drugs in Histiocytic NeoplasmsNo video
Mitali SenA Multi-Center Study of Autoimmunity in Rosai Dorfman DiseaseNo video
Alma OskarsdottirUnique Cytoplasmic Pattern of Cyclin D1 Immunostaining Distinguishes Erdheim-Chester Disease with MAPK Pathway Mutations from Reactive Histiocytic InfiltratesNo video
Vyshnavi RallapalleSystemic Xanthogranuloma or Erdheim-Chester Disease: Time to revisit the nomenclature?No video
Fatemeh Dehghani FirouzabadiOrbital Involvement in Erdheim–Chester diseaseNo video
Astrid van HalterenHistological evidence of MAPK pathway activation across all subtypes of adult orbital xanthogranulomatous disease irrespective of the presence of pathologic mutationsNo video
Paul C. HendrieClosing Remarks and Future PlansNo video

Photographs

Medical Symposium

Medical Reception

Care Center Meeting