6th Annual ECD Medical Symposium Orlando, FL

Xavier Solanich, MD, PHD
Orlando Regional Medical Center
Orlando, FL
April 1, 2018

Orlando Medical Symposium Group Picture 2018

Symposium Summary

Approximately 44 medical professionals from six countries attended the Annual ECD Medical Symposium in 2018. Ten oral abstracts were presented, along with an additional six poster presentations. As an invited speaker, Matthew Collin, delivered a talk titled “Erdheim-Chester Disease: Cancer, but not as we know it.” An evening reception provided time for discussions supporting current and future collaborations among this highly knowledgeable group of physicians and scientists, all interested in learning more about Erdheim-Chester Disease.

Attendee Experiences

“[The ECD Global Alliance] has helped me and my patients by] bringing experts together to make collaborative progress.”

– Ronald S. Go, MD, 2018 Attendee

Programs with Symposium Agenda

Presentations

PresenterPresentation SlidesEnglish Video
Julio Hajdenberg, MDWelcome AddressNot Available
Matthew Collin, MD, PhDErdheim Chester Disease: Cancer, but not as we know it.Not Available
Eli L. Diamond, MDPatient-reported outcomes in adults with Erdheim-Chester Disease: Early findings from the ECD RegistryNot Available
Benjamin Durham, MDNovel Activating Mutations in CSF1R and Additional Receptor Tyrosine Kinases in Histiocytic NeoplasmsNot Available
Ran Weissman, M.ScThe role of microRNAs in the Pathogenesis of Erdheim-Chester Disease and their Potential Use as Biomarkers for Diagnosis and Prognosis of the DiseaseNot Available
Julien Haroche, MD, PhDSlide deck not availableImaging aspect of cardiac involvement in Erdheim-Chester disease: cardiac CT and MRI of 188 patients
Gaurav Goyal, MDTumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasmsTumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms
Anaïs Roeser, MDAuto-immunity in L-group histiocytosesAuto-immunity in L-group histiocytoses
Roei Mazor, MDEfficacy of Dual BRAF/MAP2K1 Blockade in BRAF mutant Erdheim Chester Disease PatientsNo Videos available
Skand Shekhar, MDHypothyroidism in Erdheim-Chester Disease: Experience from the National Institutes of HealthNo Videos available
Gordon Ruan, MDAcute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester DiseaseAcute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease
Eli L. Diamond, MDPanel Discussion: TOXICITY OF ECD THERAPIESNo Videos available
Julio Hajdenberg, MDPanel Discussion: COMPLEX CASE STUDIESNo Videos available
Kathleen BrewerECDGA AnnouncementsNo Videos available

Photographs

Medical Symposium

Medical Meeting