by Asmaa Javed | Dec 30, 2020 | Press Releases
The ECDGA welcomes the O’Neal Comprehensive Cancer Center at the University of Alabama at Birmingham (UAB) into the referral care center network that serves Erdheim-Chester disease patients worldwide.
by Asmaa Javed | Dec 30, 2020 | Press Releases
ECDGA awards a research grant to the University of California-San Diego to improve the understanding of ECD and LCH, in addition to generating hypotheses and models that will allow for novel drug screening standards.
by Asmaa Javed | Dec 30, 2020 | Press Releases
An observational study of informal caregivers (ICs) of patients with Erdheim-Chester Disease (ECD) and other histiocytic diseases is now recruiting. Caregivers of patients participating in the Registry for ECD Patients are specifically requested, if possible, and the...
by admin | Nov 24, 2020 | Community & Support, News
A new year, new programs, and renewed HOPE are on the horizon for the ECD community! The ECD Global Alliance is reaching new levels of support for those fighting Erdheim-Chester Disease with a matching gift campaign running from December 1 to December 31, 2020! Thanks...
by admin | Sep 13, 2020 | Community & Support, Research & Awareness
By Chris Evans – ECD Awareness Week 2020 My sister, Raina, was diagnosed with a histiocytic disorder similar to Erdheim-Chester Disease in many ways. She fought valiantly against the disease for several years, even enduring an unusually painful bone marrow...
