Dear ECDGA Community,
From the bottom of our hearts, thank you.
Because of your generosity, dedication, and belief in our mission, we reached two extraordinary End of Year fundraising goals—an achievement that truly speaks to the strength of this community. First, you helped us successfully complete the $90,000 matching campaign, and then, without hesitation, you rallied once more to meet the $30,000 one-week Impact Challenge. These milestones are nothing short of remarkable.
We are deeply grateful to each and every one of you, and to our global community of supporters who stepped forward from around the world to make these campaigns a success. Your compassion knows no borders, and your support reminds us that no one in the Erdheim-Chester disease community stands alone.
Because of you, these funds will directly support what matters most:
- Advancing critical research
- Spreading awareness of Erdheim-Chester disease
- Strengthening patient and caregiver services that bring hope, support, and connection
What you have accomplished together is powerful. You are more than donors—you are advocates, partners, and a community united by kindness and purpose. The way you came together to achieve these goals is a testament to how truly wonderful this community is.
Thank you for believing in this mission, in one another, and in a future filled with greater understanding, better treatments, and hope.
With profound appreciation for the privilege of supporting the ECD community,
The ECDGA Team
Disclaimer: The Erdheim-Chester Disease Global Alliance (ECDGA) does not provide medical advice, diagnoses, or treatments. All content is for informational purposes only. Please consult with a healthcare provider for medical concerns.

