Thank you to Alexa Lofaro for hosting and the 100+ community members that participated in this virtual walk/run event! This was a volunteer-led event created to raise research funds for the advancement of ECD patient care and treatments. Approximately $25,000 was raised!
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- Join Us for the 2026 ECDGA Patient & Family Gathering in Birmingham, AL, Early Bird Deadline February 1, 2026
- The Strength of Support: How the ECDGA Support Network Empowers the ECD Community
- 2026 ECDGA Medical Symposium in Birmingham, AL, Early Bird Registration Closes February 1, 2026
- Erdheim-Chester Disease Global Alliance Announces Jerome Henson as Executive Director
- 2026 ECD Global Alliance Award Nominations Now Open

