Thank you to Alexa Lofaro for hosting and the 100+ community members that participated in this virtual walk/run event! This was a volunteer-led event created to raise research funds for the advancement of ECD patient care and treatments. Approximately $25,000 was raised!
Virtual ECD Walk/Run 2021
Search Our Blogs
Recent Posts
- Lead with Purpose: Hands-On Executive Director Role at ECD Global Alliance
- Guiding ECD Forward Through Science & Service
- Managing Erdheim-Chester Disease: The Efficacy of MEK Inhibitors in this Rare Disease
- The Leukemia & Lymphoma Society Support Series Part 3: Clinical Trial Support Center
- The Leukemia & Lymphoma Society Support Series Part 2: Information Resource Center
Archives
- May 2025
- April 2025
- March 2025
- February 2025
- January 2025
- December 2024
- November 2024
- October 2024
- August 2024
- July 2024
- December 2023
- January 2023
- December 2022
- November 2022
- October 2022
- September 2022
- June 2022
- April 2022
- February 2022
- January 2022
- December 2021
- November 2021
- October 2021
- September 2021
- June 2021
- March 2021
- February 2021
- January 2021
- December 2020
- November 2020
- September 2020
- June 2020
- May 2020
- April 2020
- March 2020
- February 2020
- January 2020
- December 2019
- October 2019
- September 2019
- February 2019
- January 2019
- December 2018
- October 2018
- February 2018
- December 2017
- February 2017
- December 2016
- February 2016
- December 2015
- February 2015
- December 2014
- February 2014
- December 2013
- February 2013
- December 2012
- February 2012
- December 2011
- February 2011
- December 2010
- December 2009
- December 2008
- December 2007
- December 2006
- December 2005
- December 2004
- December 2003
- December 2002
- December 2001
- December 2000
- December 1999
- December 1998