New ECD Care Center Welcomed in Gainesville Florida

New ECD Care Center Welcomed in Gainesville Florida

June 3, 2022 –  The University of Florida Health joins the Erdheim-Chester Disease Global Alliance Referral Care Center network in Gainesville, Florida. The Erdheim-Chester Disease (ECD) Global Alliance is proud to announce a new emerging ECD Referral Care...
What is the ECD Patient Registry?

What is the ECD Patient Registry?

Are you a part of the ECD Patient Registry? Did you know that it is extremely important to take part in such a registry? Understanding every aspect of trials, registries, or simply getting treatment for a rare disease can be overwhelming. Let us help explain the...