by admin | Nov 5, 2025 | News
Last week, ECDGA President Diane Schriner and ECDGA Staff Member Jerome Henson represented the Erdheim-Chester Disease Global Alliance (ECDGA) at the American College of Rheumatology (ACR) Annual Conference, joined by Dr. Mitali Sen, a rheumatologist from the...
by Steven May Jr | Sep 18, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/09/Thank-You-ECD-video.mp4 Ziggy the Zebra, the beloved mascot of the Erdheim-Chester Disease Global Alliance (ECDGA), is here with a heartfelt message of gratitude. To our patients, families, friends, and...
by Steven May Jr | Sep 18, 2025 | News
Erdheim-Chester Disease Global Alliance Announces 2026 Patient & Family Gathering and Medical Symposium Birmingham, AL — The Erdheim-Chester Disease Global Alliance (ECDGA) and UAB School of Medicine invites patients, families, healthcare professionals, and...
by Steven May Jr | Sep 12, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/09/Realistic_cinematic_video_202509092213_p7lyu.mp4 Ziggy the Zebra is back with a special challenge for Erdheim-Chester Disease Awareness Week—wear your stripes! By putting on stripes this week, you’re showing...
by Steven May Jr | Sep 11, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to share that every session from our 2025 Patient & Family Gathering and Medical Symposium—held May 26–27 in vibrant Barcelona—is now available to watch online. Whether you joined us in person or are...
