by Steven May Jr | Jul 31, 2025 | News
The ECD Global Alliance (ECDGA) is proud to announce the release of the complete video recordings from the 2025 Annual Patient & Family Gathering in Barcelona. If you were unable to attend in person or would like to revisit the incredible insights shared by global...
by Steven May Jr | Jul 29, 2025 | News
Please join me in welcoming Diane Schriner as the new ECD Global Alliance President. Diane has been an integral part of the ECDGA Board of Directors since 2018 and has served as Vice President since 2021. During that time, she has exemplified extraordinary compassion,...
by Steven May Jr | Jul 24, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the addition of a new ECD Care Center at University College London Hospitals (UCLH), located in London, England (NW1 2PG). This marks the 42nd ECD Care Center worldwide and the third recognized...
by Steven May Jr | Jul 5, 2025 | Social Posts
Time is ticking. The ECDGA Get Ready to Run, Walk & Roll for Hope Fun Run ends on July 15, and we are so close to our goal. With $20,999.62 raised, we are just a few steps away from reaching our $25,000 target—but we need your help to get there. Every registration...
