ECDGA 2025 Newsletter

ECDGA 2025 Newsletter

Together, We Move Forward From the Erdheim-Chester Disease Global Alliance As we step into 2025, the Erdheim-Chester Disease Global Alliance (ECDGA) reflects on another meaningful year of connection, progress, and unwavering commitment to our mission. From our...
Announcing the 2022 Annual ECD Meeting

Announcing the 2022 Annual ECD Meeting

A rare community will join together to connect & learn. Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!  During the challenges of the pandemic, serving our members remained the top...