by Steven May Jr | Jul 3, 2025 | Social Posts
The ECDGA Virtual Fun Run/Walk/Roll is gaining global traction, with participants already joining in from across the United States and beyond. We recently added Canada, Great Britain, New Zealand, and Australia and now we’re calling on supporters from around the world...
by Steven May Jr | May 7, 2025 | News
Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) hosts a singular event that brings together physicians, researchers, and care specialists from across disciplines and across borders. The ECDGA Medical Symposium is not just a scientific meeting—it is the...
by Steven May Jr | May 7, 2025 | News
Title: “Layers of Complexity: ECD Diagnosis and Management in the Presence of Confounding Comorbidities” Time: 1:30 PM – 1:55 PM Location: Bellvitge University Hospital Auditorium As Erdheim-Chester Disease (ECD) becomes more recognized and understood within the...
by Steven May Jr | May 7, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) welcomes medical professionals from around the world to the 2025 Annual Medical Symposium on Erdheim-Chester Disease, held in Barcelona at Bellvitge University Hospital. This annual gathering is the only...
by Steven May Jr | May 7, 2025 | News
Speaker: Eli Diamond, MD Time: 10:50 AM – 11:05 AM Date: May 26, 2025 Patient & Family Gathering For many individuals living with Erdheim-Chester Disease (ECD), the involvement of the brain and eyes can be among the most difficult and frightening complications to...
