https://www.erdheim-chester.org/wp-content/uploads/2025/09/Thank-You-ECD-video.mp4 Ziggy the Zebra, the beloved mascot of the Erdheim-Chester Disease Global Alliance (ECDGA), is here with a heartfelt message of gratitude. To our patients, families, friends, and...
Erdheim-Chester Disease Global Alliance Announces 2026 Patient & Family Gathering and Medical Symposium Birmingham, AL — The Erdheim-Chester Disease Global Alliance (ECDGA) and UAB School of Medicine invites patients, families, healthcare professionals, and...
https://www.erdheim-chester.org/wp-content/uploads/2025/09/Realistic_cinematic_video_202509092213_p7lyu.mp4 Ziggy the Zebra is back with a special challenge for Erdheim-Chester Disease Awareness Week—wear your stripes! By putting on stripes this week, you’re showing...
https://www.erdheim-chester.org/wp-content/uploads/2025/08/A_realistic_cinematic_202508181055_yfmfz-1.mp4 The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to introduce our newest team member—Ziggy the Zebra! Ziggy isn’t your average zebra. Ziggy...
Time is ticking. The ECDGA Get Ready to Run, Walk & Roll for Hope Fun Run ends on July 15, and we are so close to our goal. With $20,999.62 raised, we are just a few steps away from reaching our $25,000 target—but we need your help to get there. Every registration...
