by Asmaa Javed | Apr 29, 2025 | News
Raising awareness for a rare disease like Erdheim-Chester Disease (ECD) takes more than facts and figures—it takes people. It takes passion, imagination, and community spirit. And during Volunteer Month, we’re thrilled to recognize a very special kind of volunteer:...
by Asmaa Javed | Apr 29, 2025 | News
When someone first hears the words Erdheim-Chester Disease (ECD), it can feel like stepping into unfamiliar territory—an ultra-rare diagnosis that most have never encountered. But from the very beginning, one thing the ECD community makes clear is this: you are not...
