by Steven May Jr | May 6, 2025 | News
Speaker: Julien Haroche, MD, PhD Time: 9:35 AM – 9:55 AM Date: May 26, 2025 Patient & Family Gathering In the world of Erdheim-Chester Disease (ECD), few names are more widely respected than Dr. Julien Haroche. For more than two decades, Dr. Haroche has led...
by Steven May Jr | May 6, 2025 | News
The Patient and Family Gathering is one of the most anticipated events of the year for the Erdheim-Chester Disease community. Each session is carefully selected to offer insight, clarity, and support for individuals living with ECD and the loved ones who stand beside...
by Steven May Jr | May 6, 2025 | News
As you prepare to attend the 10th Annual Patient and Family Gathering hosted by the Erdheim-Chester Disease Global Alliance (ECDGA), we want to ensure you have all the practical information and context you need to feel confident and supported from the moment you...
by Asmaa Javed | May 6, 2025 | News
Why Early Diagnosis Matters in Erdheim-Chester Disease: Marc’s Story Being diagnosed with a rare disease like Erdheim-Chester Disease (ECD) can be overwhelming. For many, the path to finding answers is long, confusing, and often marked by years of uncertainty. But...
by Steven May Jr | May 3, 2025 | News
Progress in Erdheim-Chester Disease (ECD) doesn’t happen in isolation. It’s made possible through collaboration among scientists, clinicians, and the patients and families who push forward despite the unknowns. At the center of this progress stands the Medical...
