by Steven May Jr | Jun 6, 2025
The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 16 through July 15, 2025, we invite YOU—patients, caregivers, supporters, and advocates around...
by Steven May Jr | May 7, 2025 | News
Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) hosts a singular event that brings together physicians, researchers, and care specialists from across disciplines and across borders. The ECDGA Medical Symposium is not just a scientific meeting—it is the...
by Steven May Jr | May 7, 2025 | News
Title: “Layers of Complexity: ECD Diagnosis and Management in the Presence of Confounding Comorbidities” Time: 1:30 PM – 1:55 PM Location: Bellvitge University Hospital Auditorium As Erdheim-Chester Disease (ECD) becomes more recognized and understood within the...
by Steven May Jr | May 7, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) welcomes medical professionals from around the world to the 2025 Annual Medical Symposium on Erdheim-Chester Disease, held in Barcelona at Bellvitge University Hospital. This annual gathering is the only...
by Steven May Jr | May 7, 2025 | News
Speaker: Eli Diamond, MD Time: 10:50 AM – 11:05 AM Date: May 26, 2025 Patient & Family Gathering For many individuals living with Erdheim-Chester Disease (ECD), the involvement of the brain and eyes can be among the most difficult and frightening complications to...
