by Asmaa Javed | Dec 31, 2017 | Old News
An ECD patient, along with friends and family, set out to raise awareness of ECD and funding for the ECDGA with a local restaurant fundraiser! This radio interview helped spread the word.
by Asmaa Javed | Dec 31, 2017 | Old News
ECD survivor Dawn Smith shares her journey living with this disease.
by Asmaa Javed | Dec 31, 2017 | Old News
“I, Caityln Walch, think ECD is very important. My grandpa was diagnosed with ECD about 2 years ago. That didn’t stop him though. Ever since I was born my grandpa took care of me so I will take care of him. And that’s why ECD is so important to me. Don’t give up...
by Asmaa Javed | Dec 31, 2017 | Press Releases
Peking Union Medical College Hospital joins an elite group of hospitals skilled in treating Erdheim-Chester disease patients.
by Asmaa Javed | Dec 31, 2017 | Press Releases
Nashville, TN is the newest location Erdheim-Chester Disease patients can go for treatment by ECD-knowledgeable doctors.
