Dec 31, 2016
“It’s really hard knowing there is a drug out there that if I can’t get then my life is going to be over.” – Canadian patient with Erdheim-Chester Disease
Dec 31, 2016
ECD Global Alliance president and founder, Kathy Brewer, spoke to a local club about the progress of the local non-profit.
Dec 31, 2016
Exceptional contributors recognized at the Third Annual International Erdheim-Chester Disease Patient & Family Gathering.
Dec 31, 2016
The ECD Global Alliance awards Erdheim-Chester Disease research grant for new treatment possibilities using the RCCS™ Bioreactor.
Dec 31, 2016
Erdheim-Chester Disease is one of 7,000 rare diseases supported by the Louisiana proclamation.