by Asmaa Javed | Jan 23, 2025 | Past Awards
Matthew Collin (Newcastle University, Newcastle upon Tyne, UK) Eli Diamond, MD (Memorial Sloan Kettering Cancer Center, New York, NY US) The 2014 grant was awarded to principal investigators Eli Diamond, MD from Memorial Sloan-Kettering Cancer Center in New York, and...
by Asmaa Javed | Dec 31, 2014 | Old News
A newspaper article was written about Leslie Adler, and her experiences living with ECD.
by Asmaa Javed | Dec 31, 2014 | Old News
A picture and story (story not available online) about Bonnie Schulz, a patient living with ECD.
by Asmaa Javed | Dec 31, 2014 | Old News
A video from Memorial Sloan-Kettering Cancer Center in New York features an ECD patient, Rita, who is currently enrolled in the vemurafenib trial. Rita’s is a remarkable story that begins at the 2 minutes, 22-second mark of this 5-1/2 minute video.
by Asmaa Javed | Dec 31, 2014 | Old News
The August 2014 NIH Clinical Center Newsletter featured a story about the planned 2014 ECD Medical Symposium hosted by the NIH, in partnership with the ECD Global Alliance.