by Asmaa Javed | Dec 31, 2011 | Uncategorized
An article about a patient and her husband, living in Arizona, who are working to help raise awareness of ECD and fund ECD research.
by Asmaa Javed | Dec 31, 2011 | Voices of ECD
An article about a man, with Erdheim-Chester Disease, who with his wife has started a nonprofit organization called, ‘Angel Hearts’. The organization is dedicated to helping families who are in need because of medical conditions, including illness and...
by Asmaa Javed | Dec 31, 2011 | Uncategorized
A short article appeared in the Japanese news media in September 2011. It states that the first lung transplant to an Erdheim-Chester Disease patient occurred at Okayama University Hospital in Japan.
by Asmaa Javed | Dec 31, 2011 | Voices of ECD
An inspirational first-person account from someone who is living with ECD. *A version of the “A Man Blessed” story from above that does not require a subscription to the newspaper.
by Asmaa Javed | Dec 31, 2011 | Voices of ECD
Describes the exercise program, and related benefits, of one ECD patient, a former doctor who lives in the UK.
