by Asmaa Javed | Jan 23, 2025 | Past Awards
Lorenzo Dagna, MD In April 2010, only one month after receiving a 501(c)(3) designation, the organization announced it would be awarding a $50,000 ECD research grant and put out a Request for Proposals (RFP) to the international medical research community. In...
by Asmaa Javed | Dec 31, 2011 | Old News
A news story from the Yorkshire Post about a doctor who has been diagnosed with Erdheim-Chester Disease. He discusses his experiences in living with ECD.
by Asmaa Javed | Dec 31, 2011 | Old News
A news story about a young woman with Erdheim-Chester Disease (see story below) who met her future husband at a scuba dive event.
by Asmaa Javed | Dec 31, 2011 | Old News
A local news story about a Hillsboro, Missouri man and his journey related to Erdheim-Chester Disease.
by Asmaa Javed | Dec 31, 2011 | Old News
A local news story about a couple in Missouri who are learning to cope with Erdheim-Chester Disease.
