The ECD Global Alliance is excited to announce that registration is now open for the 2026 Patient & Family Gathering and Medical Symposium, to be held in Birmingham, Alabama.
This important annual event brings together patients, caregivers, family members, clinicians, and researchers for a time of learning, support, and connection.
Event Details
- Meet & Greet: April 29, 2026
- Patient & Family Gathering: April 30, 2026
- Location: Birmingham, AL
- Hosted by: The ECD Global Alliance and the UAB School of Medicine
What to Expect
Participants will have the opportunity to:
- Hear from leading experts about the latest in ECD research and treatment
- Join breakout discussions for patients and caregivers
- Connect with others in the ECD community
- Learn practical tools, resources, and information to support daily life with ECD
Registration Is Open
Secure your spot today to take part in this meaningful gathering.
Early bird registration is available until February 1, 2026.
More Information
For more event details, please visit erdheim-chester.org or contact us at support@erdheim-chester.org. We are happy to assist with any questions.
We look forward to welcoming you to Birmingham!