New York ECD patient, Mohammad Chowdhury, reached out to his network by sharing his story about living with ECD and the work of the ECDGA. He was able to reach his goal of $5,000 in one month! He was pleased with the results, “When I decided to let my friends and family know about my ECD diagnosis, I also decided to use the opportunity to ask them to support my fundraising for ECDGA. I have received very strong responses from the people I contacted, and I am very glad that I used the opportunity for this noble cause.” [Mohammad used gofundme.com to see his fundraising through. The ECDGA also has personal page setup options on our website. It’s easy to add your story and get your page published and shared with your friends! Please contact us for help!]
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