The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce that nominations are now open for the prestigious Mark Heaney Memorial Award for Awareness. This annual award commemorates the significant contributions of Dr. Mark Heaney, a renowned hematologist at Columbia University, whose dedication profoundly shaped the Alliance from its inception until his passing in 2022.
Dr. Heaney’s unwavering commitment to the ECD community has left an indelible mark, inspiring this award that honors individuals or groups who have demonstrated exceptional commitment to raising awareness of Erdheim-Chester Disease (ECD) and adult Histio-related conditions. The goal of these awareness activities is crucial—they aim to educate physicians and other key figures who can aid in the early and accurate diagnosis of ECD.
The Mark Heaney Memorial Award for Awareness is open to everyone—patients, caregivers, medical professionals, investigators, friends—regardless of nationality or residence. Eligible nominees are those who have undertaken outstanding and effective awareness activities over the past 12 months, targeting medical and health professionals to enhance their understanding and ability to diagnose ECD early.
If you know someone who has been actively involved in such transformative awareness efforts, we encourage you to submit a nomination on their behalf. By recognizing and celebrating these vital contributions, the ECDGA continues to advance its mission to increase awareness and improve outcomes for those affected by this rare disease.
To nominate an individual or group for the Mark Heaney Memorial Award for Awareness, please click the link below to access the nomination form. Help us honor the legacy of Dr. Mark Heaney and the many advocates who follow in his footsteps, dedicated to enlightening the medical community about ECD.
Nominations are now open. The recipient of the award will be announced during the upcoming ECDGA Annual Meeting. Join us in celebrating the champions of ECD awareness and their crucial role in changing the landscape of this disease.