We are excited to announce that registration is now open for the 2026 ECD Global Alliance Patient & Family Gathering, taking place in Birmingham, Alabama!
Early bird registration is available until February 1, 2026. We encourage you to register early to take advantage of this special rate and to help us plan for the best possible experience for all attendees.
This annual event brings together patients, caregivers, family members, clinicians, and researchers for a time of connection, education, and hope. It is one of the most meaningful opportunities we have each year to support one another, learn from leading experts, and strengthen our community.
Event Details
Location: Birmingham, AL
Meet & Greet: April 29, 2026
Patient & Family Gathering: April 30, 2026
Hosted by:
- The ECD Global Alliance
- The UAB School of Medicine
What to Expect
- Educational sessions covering the latest in ECD research and treatment
- Presentations from leading medical experts
- Supportive discussions for patients and caregivers
- Opportunities to connect with others living the ECD journey
- Community-building activities and shared experiences
This conference is designed to empower, inform, and inspire — whether you are newly diagnosed or have been part of the ECD community for years.
Registration Is Now Open
Secure your spot today and be part of this important gathering.
For additional details about the event, please visit our website at erdheim-chester.org.
If you have any questions, you can also reach us directly at support@erdheim-chester.org — we’re here to help.
We look forward to welcoming you to Birmingham and sharing this enriching weekend together.