Events
12th Annual ECD Medical Symposium – Glasgow, Scotland 2027
We are excited to announce that the 12th Annual ECDGA Medical Symposium will be held in Glasgow, Scotland in August 2027. This special event will bring ...
12th Annual ECD Patient & Family Gathering – Glasgow, Scotland 2027
We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held in Glasgow, Scotland in August 2027. This special event ...
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News
Lace Up for Hope: Join the 2026 Run, Walk & Roll to Support Erdheim-Chester Disease Awareness
Join us for the 2026 ECDGA Fun Run, Walk, or Roll happening June 1–30, 2026!
This month-long community event is a fun and meaningful way to support ...
Racing Toward Hope: 2026 Fun Run Fundraising Tracker
The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2026 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & ...
No results found.
Events
12th Annual ECD Medical Symposium – Glasgow, Scotland 2027
We are excited to announce that the 12th Annual ECDGA Medical Symposium will be held in Glasgow, Scotland in August 2027. This special event will bring ...
12th Annual ECD Patient & Family Gathering – Glasgow, Scotland 2027
We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held in Glasgow, Scotland in August 2027. This special event ...
No results found.
News
Lace Up for Hope: Join the 2026 Run, Walk & Roll to Support Erdheim-Chester Disease Awareness
Join us for the 2026 ECDGA Fun Run, Walk, or Roll happening June 1–30, 2026!
This month-long community event is a fun and meaningful way to support ...
Racing Toward Hope: 2026 Fun Run Fundraising Tracker
The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2026 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & ...
No results found.
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A network of ECD Care Centers is available to help patients find knowledgeable doctors to confirm a
diagnosis and to provide treatments and ongoing care. These institutions are committed to having a
team of specialists available to provide the best care to ECD patients.
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Location
P.O. Box 775
DeRidder, LA 70634 USA
DeRidder, LA 70634 USA
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Every donation helps fund critical research and ensures no one faces ECD alone.