The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to share that every session from our 2025 Patient & Family Gathering and Medical Symposium—held May 26–27 in vibrant Barcelona—is now available to watch online.
Whether you joined us in person or are tuning in from around the world, these full-day video collections bring the same knowledge, hope, and connection straight to your screen.
Day 1: Patient & Family Gathering – A Day of Knowledge and Community
On May 26, patients, families, and experts came together at Bellvitge University Hospital for a day packed with learning and encouragement. The program featured:
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Cutting-Edge Science: Updates on the biology of Erdheim-Chester Disease, current research breakthroughs, and the latest treatment options—from targeted therapies to emerging clinical trials.
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Living with ECD: Deep dives into clinical manifestations, brain/eye and kidney involvement, and strategies to manage side effects.
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Whole-Person Care: Sessions on mental and emotional health, pain and fatigue management, staying active, and eating well, all capped by expert Q&A panels.
To ensure global accessibility, this entire day has been translated into French, Italian, Spanish, and German, with a dedicated playlist for each language:
Day 2: Medical Symposium – Advancing Research and Care
On May 27, leading clinicians and researchers gathered for a focused Medical Symposium, sharing the most up-to-date insights into ECD biology, treatment innovation, and clinical best practices.
This content is available in English:
Why Watch?
These recordings capture the full spirit of the Barcelona event—a unique chance to learn directly from global experts and hear firsthand stories from the ECD community. Whether you’re a patient, caregiver, or healthcare professional, these sessions offer practical guidance, the latest scientific developments, and an enduring sense of hope.
Join us on this journey of understanding and connection.
Click the links above to explore the videos and share them with friends, family, and your medical team. Together, we continue to push forward—toward better treatments, stronger community support, and brighter days ahead.