Webinars

In this review of the latest ECD Consensus Guidelines 2020, the presentation and discussion are tailored for the medical professional community.

Dr. Gaurav Goyal, University of Alabama, Birmingham, led the educational meeting by presenting the topic of Impact on adult patients with LCH and Erdheim-Chester, ongoing treatments, and studies.

The 8th Annual International ECD Medical Symposium was held on November 16, 2021. This virtual experience was organized in hopes that the medical community is provided the opportunity to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease and other histiocytic disorders.

This is the start of the Beyond the Office Visit virtual education series co-hosted with the Histiocytosis Association.

The ECD Global Alliance (ECDGA) and the Histiocytosis Association co-host Beyond the Office Visit virtual education series, Part Two: Functional Nutrition & Wellness.

Tim Facciola, Certified Personal Trainer & Movement Specialist, joins us in a conversation about incorporating movement and exercise into life when managing a chronic illness or a rare disease, such as Erdheim-Chester Disease.

Learn about the treatments used to treat Erdheim-Chester disease (ECD), what to expect over time and the side effects that may be involved.

Taking part in a clinical trial can have many benefits for the patient and the community. We hope this session will help you better understand clinical trials, how to talk to your doctor about trials, and leave you feeling prepared with the right resources.

Dr. Michael Girschikofsky from the Elisabethinen Hospital Linz explains ECD to German-speaking ECD patients and families.

Listen to Kevin O'Brien, NP, and Josef Lacy discussing mental health challenges and effective techniques for overcoming them. Gain insights firsthand from an ECD patient who shares his inspiring journey triumphing over mental health issues.

Listen to an experienced ECD caregiver as she shares her insights and coping mechanisms for self-care.

Information Specialists offer free, one-on-one education, psychosocial support, and advocacy for blood cancer patients, caregivers, and families. They cover disease and treatment options, clinical trials, mental health support, and treatment team communication.