Using ECD Consensus Recommendations: Advocating for your health
An educational webinar was held to explain the newest Erdheim-Chester Disease (ECD) consensus document and learn how to use it for care and payer support.
12 events found.
Webinars
Histio Patient Needs: A Focus on the Eyes and Vision
In this webinar, the doctors at Memorial Sloan Kettering Cancer Center (MSK) help further your understanding of how current eye involvement may affect daily life and how to obtain better outcomes and results.
Endocrine Conditions in Erdheim-Chester Disease
This webinar, co-hosted by the Histiocytosis Association and Erdheim-Chester Disease Global Alliance focused on ECD and covers endocrine conditions and their management across all histiocytic disorders.
Understanding the NCCN Clinical Practice Guidelines for Histiocytic Neoplasms
A review of the recently published National Comprehensive Cancer Network (NCCN) Guidelines® for Histiocytosis.
Erdheim-Chester disease: A review of updated guidelines in the molecular era
In this review of the latest ECD Consensus Guidelines 2020, the presentation and discussion are tailored for the medical professional community.
Talk for adult patients with Histiocytosis and ECD. Organized by OR Association and HA.
Dr. Gaurav Goyal, University of Alabama, Birmingham, led the educational meeting by presenting the topic of Impact on adult patients with LCH and Erdheim-Chester, ongoing treatments, and studies.
2021 ECD Virtual Medical Symposium
The 8th Annual International ECD Medical Symposium was held on November 16, 2021. This virtual experience was organized in hopes that the medical community is provided the opportunity to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease and other histiocytic disorders.
Beyond the Office Visit: Managing the Cost of Histio Care
This is the start of the Beyond the Office Visit virtual education series co-hosted with the Histiocytosis Association.
Beyond the Office Visit – Part Two: Functional Nutrition & Wellness
The ECD Global Alliance (ECDGA) and the Histiocytosis Association co-host Beyond the Office Visit virtual education series, Part Two: Functional Nutrition & Wellness.
Beyond the Office Visit: Moving Through Rare Disease
Tim Facciola, Certified Personal Trainer & Movement Specialist, joins us in a conversation about incorporating movement and exercise into life when managing a chronic illness or a rare disease, such as Erdheim-Chester Disease.
Erdheim-Chester Disease Targeted Therapies: The good and the bad
Learn about the treatments used to treat Erdheim-Chester disease (ECD), what to expect over time and the side effects that may be involved.
Beyond the Office Visit: Navigating Clinical Trials for Histiocytosis
Taking part in a clinical trial can have many benefits for the patient and the community. We hope this session will help you better understand clinical trials, how to talk to your doctor about trials, and leave you feeling prepared with the right resources.