The Leukemia & Lymphoma Society offers a free service called the Clinical Trial Support Center (CTSC) to help blood cancer patients, caregivers, and healthcare professionals find potential clinical trials and overcome enrollment barriers. This webinar will discuss the process and support Erdheim-Chester patients.
Overview of the various education resources and support services provided to patients and their families and the healthcare providers that care for them.
Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders and rare diseases, including histiocytosis.
Speaker: Pat Gildroy, Ph.D Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living with Arginine Vasopressin Deficiency, formerly known as Diabetes Insipidus. Register Here
Date: September 23, 2025 Time: 1:00 PM CT Speaker: Gaurav Goyal, M.D. University of Alabama at Birmingham Dr. Goyal was born and raised in India and completed his Hematology-Oncology Fellowship at the Mayo Clinic in Rochester, Minnesota. During his time at the Mayo Clinic, he developed a specialized focus on histiocytic disorders, including Erdheim-Chester Disease, Langerhans cell […]
Date: October 21, 2025 Time: 2:00 PM CT Speaker: Samuel B. Reynolds, M.D. Moffitt Cancer Center Dr. Reynolds is originally from the Boston area and completed medical school at The University of South Florida Morsani College of Medicine. He would then complete an Internal Medicine residency and chief residency at The University of Louisville and a […]
Speaker: XinXin Cao, MD Cancer Hospital, Chinese Academy of Medical Sciences, Chief Physician, PhD Supervisor, Deputy Director of Internal Medicine (Langfang Campus) Has long been engaged in clinical and basic research on histiocytic disorders. Register Here
Speaker: Jerome Razanamahery, MD Dijon University Hospital Date: December 1, 2025 Time: 5:00 PM CET (UTC +1) (Paris Time) Dr. Razanamahery is an expert in internal medicine with a recognized specialization in the field of rare histiocytoses, including Erdheim-Chester Disease (ECD). He is a clinician-researcher at the University Hospital Center of Dijon, where he heads […]
Speaker: Mo Atta, MD, MPH Johns Hopkins Hospital Department of Nephrology Date: January 29, 2026 Time: 1:00 PM CST Dr. Mohamed G. Atta is a Professor of Medicine at Johns Hopkins University where he's a practicing Nephrologist. He trained in nephrology at the Urology and Nephrology Center at Mansoura University and at Johns Hopkins. Dr. […]
Speaker: Kevin O'Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: February 19, 2026 Time: 1:00 PM CST Kevin O’Brien is a nurse practitioner and clinical investigator at the National Human Genome Research Institute (NHGRI) of the National Institutes of Health in Bethesda, Maryland. He earned his Bachelor of Science […]
Relatore: Dott. Francesco Peyronel Nefrologo, Centro Medico Corfù71, Brescia Ricercatore clinico, PhD candidate presso l'Università di Firenze Date: 24 marzo 2026 Orario: 17:00 CET (Firenze) La malattia di Erdheim-Chester è una malattia rara che può coinvolgere diversi organi del corpo e richiede spesso un approccio multidisciplinare. In questo webinar verranno spiegati in modo semplice i […]
Speaker: Nicole Hemmenway Chief Executive Officer U.S. Pain Foundation Date: April 7, 2026 Time: 1:00 PM CST Nicole Hemmenway is the Chief Executive Officer of the U.S. Pain Foundation, a patient-led nonprofit working to support the more than 60 million Americans living with chronic pain. A passionate advocate and nonprofit leader, Nicole brings both professional expertise […]
