Culver’s of Highland, Indiana held a fundraiser for ECD on Rare Disease Day 2016. Interested patrons dined on this day during the designated time. By grabbing an event flyer at the restaurant from ECD patient Ashley, 10% of the cost of their meal went to fund ECD research and patient support through the ECD Global Alliance. Many locals came out to show their support, increasing awareness of ECD and donating to our mission.
A second Dine & Donate at Culver’s Restaurant fundraiser was held on August 6, 2016. More funds were donated to the ECDGA and awareness was raised among the community members that joined the ECD patient, Ashley M., for a bite to eat!