by Asmaa Javed | May 2, 2025 | Webinar Recordings
Listen to Kevin O’Brien, NP, and Josef Lacy discussing mental health challenges and effective techniques for overcoming them. Gain insights firsthand from an ECD patient who shares his inspiring journey triumphing over mental health issues.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Listen to an experienced ECD caregiver as she shares her insights and coping mechanisms for self-care.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Discover insights from a leading expert on Rosai-Dorfman Disease. Gain a deeper understanding of this rare condition, its symptoms, diagnosis, and the latest treatment options. Don’t miss out on expert knowledge that could make a difference!
by Asmaa Javed | Apr 25, 2025 | Webinar Recordings
Watch webinar on youtube This is the start of the Beyond the Office Visit virtual education series co-hosted with the Histiocytosis Association. Speakers Deandre Pate and Victoria Lassen from Memorial Sloan Kettering walk through ways to manage healthcare costs, find...
by Asmaa Javed | Feb 15, 2025 | Webinar Recordings
An educational webinar was held to explain the newest Erdheim-Chester Disease (ECD) consensus document and learn how to use it for care and payer support. Questions answered following the meeting are posted here. Recorded June 2020
by Asmaa Javed | Feb 15, 2025 | Webinar Recordings
In this review of the latest ECD Consensus Guidelines 2020, the presentation and discussion are tailored for the medical professional community. Please share with your colleagues or care team. Recorded November 2020