by Asmaa Javed | May 2, 2025 | Webinar Recordings
Tim Facciola, Certified Personal Trainer & Movement Specialist, joins us in a conversation about incorporating movement and exercise into life when managing a chronic illness or a rare disease, such as Erdheim-Chester Disease.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Learn about the treatments used to treat Erdheim-Chester disease (ECD), what to expect over time and the side effects that may be involved. Ginny-Tyler Meadows is a clinical pharmacist serving the hematology/oncology clinics at The Kirklin Clinic at the University of...
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Taking part in a clinical trial can have many benefits for the patient and the community. We hope this session will help you better understand clinical trials, how to talk to your doctor about trials, and leave you feeling prepared with the right resources.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Dr. Michael Girschikofsky from the Elisabethinen Hospital Linz explains ECD to German-speaking ECD patients and families.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Listen to Kevin O’Brien, NP, and Josef Lacy discussing mental health challenges and effective techniques for overcoming them. Gain insights firsthand from an ECD patient who shares his inspiring journey triumphing over mental health issues.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Listen to an experienced ECD caregiver as she shares her insights and coping mechanisms for self-care.
