by Asmaa Javed | Sep 23, 2025 | Webinar Recordings
Presented by Dr. Gaurav Goyal, University of Alabama at Birmingham In partnership with the Erdheim-Chester Disease Global Alliance (ECDGA) This presentation explores the importance of survivorship research in Erdheim-Chester Disease (ECD) and the critical role...
by Asmaa Javed | Sep 8, 2025 | Webinar Recordings
Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living with Arginine Vasopressin Deficiency, formerly known as Diabetes...
by Asmaa Javed | Jul 24, 2025 | Webinar Recordings
Watch webinar on youtube Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders and rare diseases, including histiocytosis. In addition to his...
by Asmaa Javed | May 2, 2025 | Webinar Recordings
The Leukemia & Lymphoma Society offers a free service called the Clinical Trial Support Center (CTSC) to help blood cancer patients, caregivers, and healthcare professionals find potential clinical trials and overcome enrollment barriers. This webinar will...
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Information Specialists offer free, one-on-one education, psychosocial support, and advocacy for blood cancer patients, caregivers, and families. They cover disease and treatment options, clinical trials, mental health support, and treatment team communication.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Overview of the various education resources and support services provided to patients and their families and the healthcare providers that care for them.
