Almost Alone: Jefferson County man is one of the few with Erdheim-Chester Disease Dec 31, 2011A local news story about a Hillsboro, Missouri man and his journey related to Erdheim-Chester Disease.
First Annual Gary Brewer Memorial Run Dec 31, 2011A local news story about a high school student who is working to raise money for ECD research.
Prescott Valley woman’s rare disease triggers fundraiser for research Dec 31, 2011An article about a patient and her husband, living in Arizona, who are working to help raise awareness of ECD and fund ECD research.
Erdheim-Chester Patient Gets Lungs Dec 31, 2011A short article appeared in the Japanese news media in September 2011. It states that the first lung transplant to an Erdheim-Chester Disease patient occurred at Okayama University Hospital in Japan.
