by Steven May Jr | Jan 15, 2026 | Uncategorized
A look back at the moments, milestones, and messages you may have missed. As 2025 comes to a close, we’re taking a moment to look back at a year that brought connection, education, progress, and support to the ECD community around the world. Whether you’ve been...
by Asmaa Javed | Jan 15, 2026 | Uncategorized
Together, We Move Forward From the Erdheim-Chester Disease Global Alliance As we step into 2025, the Erdheim-Chester Disease Global Alliance (ECDGA) reflects on another meaningful year of connection, progress, and unwavering commitment to our mission. From our...
by admin | Dec 26, 2025 | Uncategorized
Dear ECDGA Community, As we approach the close of the year, we want to take a moment to thank you for being such an important part of the ECDGA community. Your generosity, encouragement, and belief in our mission make a meaningful difference every single day. There is...
by Asmaa Javed | Dec 31, 2024 | Uncategorized
“When you become very good at caregiving, you have to understand the difference between a ‘laugh cry’ and a ‘sad cry’,” he said as he addressed a room of people going through similar situations.
by Asmaa Javed | Dec 31, 2017 | Uncategorized
An ECD patient, along with friends and family, set out to raise awareness of ECD and funding for the ECDGA with a local restaurant fundraiser! This radio interview helped spread the word.
by Asmaa Javed | Dec 31, 2016 | Uncategorized
Holding strong to faith gives hope when terminally ill. Gerry Gallick tells the story of how he was diagnosed with a rare incurable blood disease, Erdheim-Chester Disease.
