Together, We Move Forward From the Erdheim-Chester Disease Global Alliance As we step into 2025, the Erdheim-Chester Disease Global Alliance (ECDGA) reflects on another meaningful year of connection, progress, and unwavering commitment to our mission. From our...
Dear ECDGA Community, As we approach the close of the year, we want to take a moment to thank you for being such an important part of the ECDGA community. Your generosity, encouragement, and belief in our mission make a meaningful difference every single day. There is...
“When you become very good at caregiving, you have to understand the difference between a ‘laugh cry’ and a ‘sad cry’,” he said as he addressed a room of people going through similar situations.
An ECD patient, along with friends and family, set out to raise awareness of ECD and funding for the ECDGA with a local restaurant fundraiser! This radio interview helped spread the word.
Holding strong to faith gives hope when terminally ill. Gerry Gallick tells the story of how he was diagnosed with a rare incurable blood disease, Erdheim-Chester Disease.
