by admin | May 26, 2025 | Social Posts
Dr. Eli Diamond, a leading expert in Erdheim-Chester Disease, presented at the 2025 ECDGA Patient and Family Gathering in Barcelona. His dedication to advancing research and improving care continues to make a profound impact on the ECD community. We are honored to...
by admin | May 26, 2025 | Social Posts
Our host from Bellvitge University Hospital, Dr. Xavier Solanich, along with ECDGA board member Dr. Juvianee Estrada-Veras, warmly welcomes patients, families, and medical professionals to Barcelona for the annual Patient and Family Gathering. This special event...
by Steven May Jr | May 24, 2025 | Social Posts
The ECDGA staff and volunteers have officially arrived in Barcelona and are already hard at work preparing for the upcoming Patient and Family Gathering. This annual event is a special opportunity for the ECD community to come together in person, share experiences,...
by Steven May Jr | May 24, 2025 | Social Posts
The ECDGA staff and volunteers are hard at work making final preparations for this year’s Erdheim-Chester Disease Medical Symposium. Taking place at Bellvitge University Hospital in Barcelona, this annual event brings together leading medical professionals from around...
by Steven May Jr | May 24, 2025 | Social Posts
Dr. Gaurav Goyal of the University of Alabama at Birmingham (UAB) is pictured here proudly supporting the Erdheim-Chester Disease Global Alliance (ECDGA) during his time in Barcelona. Dr. Goyal has been an active voice in the ECD medical community, and his continued...
by Steven May Jr | May 3, 2025 | Social Posts
Are you a driven, roll-up-your-sleeves leader who thrives in dynamic, small-team environments? Do you want to make a real difference in the lives of people affected by a rare disease—while wearing many hats and taking action every single day? The Erdheim-Chester...
