The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce that the recording of our recent Spanish-language webinar is now available to view on our YouTube channel. This special session, held on July 24, 2025, features Dr. Xavier Solanich from...
We’re standing just shy of the finish line—$24,017.57 raised of our $25,000 goal. That means we’re only $982.43 away from achieving something powerful. This campaign has always been about more than a number. It’s about the strength of our community. The determination...
Time is ticking. The ECDGA Get Ready to Run, Walk & Roll for Hope Fun Run ends on July 15, and we are so close to our goal. With $20,999.62 raised, we are just a few steps away from reaching our $25,000 target—but we need your help to get there. Every registration...
The ECDGA Virtual Fun Run/Walk/Roll is gaining global traction, with participants already joining in from across the United States and beyond. We recently added Canada, Great Britain, New Zealand, and Australia and now we’re calling on supporters from around the world...
The ECDGA Virtual Fun Run/Walk/Roll is picking up momentum with participants from 25 states and counting. We’re on a mission to fill in the entire U.S. map, and we’d love to see your state represented. Whether you walk, run, or roll, you can make a difference. Join us...
When it comes to raising awareness for Erdheim-Chester Disease (ECD), every mile counts—and every method of movement matters. In the 2024 ECDGA Fun Run, one incredible team reminded us all of that in the best way possible. Meet Team Peddling Froetschers—a powerhouse...
