by admin | May 29, 2025 | Social Posts
Here is the group photo of the doctors who participated in the 2025 ECDGA Medical Symposium in Barcelona. These physicians and researchers represent the global collaboration driving forward the science, diagnosis, and treatment of Erdheim-Chester Disease. We are...
by admin | May 27, 2025 | Social Posts
Members of the ECDGA Medical Advisory Board and the Board of Directors came together during the Celebration Dinner at the 2025 Patient and Family Gathering in Barcelona. This moment reflects the collaboration and dedication of those working behind the scenes to...
by admin | May 27, 2025 | Social Posts
During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. This honor is given to individuals who embody the spirit of compassion, support, and advocacy within the Erdheim-Chester Disease...
by admin | May 27, 2025 | Social Posts
At the 2025 ECDGA Patient and Family Gathering in Barcelona, Professor Julien Haroche was honored with the Mark Heaney Award for Excellence in ECD Clinical Care and Research. This award recognizes individuals who have made significant contributions to advancing the...
by admin | May 27, 2025 | Social Posts
At the 2025 ECDGA Celebration Dinner in Barcelona, the Host Award was presented to Dr. Xavier Solanich of Bellvitge Hospital. The award was given in recognition of his outstanding support and hospitality in welcoming patients, family members, and medical professionals...
by admin | May 26, 2025 | Social Posts
This year’s ECDGA Patient and Family Gathering in Barcelona brought together patients, caregivers, and medical professionals from around the world. This group photo captures the spirit of connection and community that defines this annual event. Together, we share...
