by publer | Jan 6, 2026 | Social Posts
Dear ECDGA Community,From the bottom of our hearts, thank you.Because of your generosity, dedication, and belief in our mission, we reached two extraordinary End of Year fundraising goals—an achievement that truly speaks to the strength of this community....
by Steven May Jr | Jan 5, 2026 | Social Posts
Of our additional $30,000 Impact Challenge, the ECDGA community has already raised an incredible $28,950. Today is the last day and we are only $1,050 away from meeting this challenge. Every dollar donated will be matched dollar for dollar, instantly doubling your...
by publer | Nov 29, 2025 | Social Posts
Erdheim-Chester Disease is ultra-rare, but our community is powerful — and your donation helps amplify every voice.Remember: All gifts will be matched up to $90,000.Let’s spread awareness. Let’s support families. Let’s fuel research.
by Steven May Jr | Nov 28, 2025 | Social Posts
This year, your gift to the Erdheim-Chester Disease Global Alliance will go TWICE as far thanks to a generous $90,000 matching challenge. Your support fuels awareness, patient programs, and groundbreaking research. Stay tuned to learn how your impact can be...
by admin | Oct 29, 2025 | Social Posts
Living with Erdheim-Chester Disease—whether as a patient or caregiver—can bring overwhelming moments. Between doctor visits, uncertainty, and everyday life, it’s easy to feel the weight of it all. But you’re not alone. Here are a few gentle reminders and coping...
by Steven May Jr | Oct 1, 2025 | Social Posts
Left to right: Diane Schriner (ECDGA), Dr. Ronald Go (Mayo Clinic, Rochester), and Jerome Henson (ECDGA) discuss care strategies and research priorities. Dr. Go is a valued member of the ECDGA Medical Advisory Board.
