ECDGA

The Erdheim-Chester Disease Global Alliance connects patients, families, and researchers worldwide, supporting those affected and advancing research on this rare disease.

LHF Espoir 

Is a French association dedicated to supporting patients and families affected by histiocytic diseases. They work to raise awareness, provide reliable information, encourage research, and create a strong community of solidarity for those facing these rare...

AIRI Onlus Italy

Is a non-profit association in Italy that supports patients and families affected by rare immunological and histiocytic disorders. They focus on providing assistance, spreading awareness, promoting medical research, and creating a network of solidarity among patients,...