by Steven May Jr | Sep 8, 2025 | Community Fundraisers, News
ECD Awareness Week is September 8–14, 2025, and we need YOU to help raise awareness and show the world what it means to be part of the ECD family. Awareness Week is important because Erdheim-Chester Disease (ECD) is so rare that many people— even in the medical...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
Some businesses offer a way for non-profit’s like the ECDGA to benefit from a percentage of their sales for a certain time frame. Ask around in your local community or find online franchises willing to participate. It’s a great way for a business to get involved in...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
This fundraiser was held during ECD Awareness Week. The benefit was hosted by friends and family at a local restaurant. Tickets to the event, which were $25, included 20 raffle tickets, a 50/50 raffle ticket and there was also a silent auction for donated items. This...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
Bob and Phyllis Rodgers hosted the ECD Angel of Hope Park-to-Park 5K Fun Run on Sept. 19 during ECD Awareness Week to raise funds and awareness of the rare disease. They managed to raise awareness across the nation and $5,248 for the ECDGA!
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
This challenge was presented anonymously by one of our members who pledged to match, dollar for dollar, every donation made from October 27 to December 31, 2015, up to $25K. We are very excited to report that $90K was raised for the ECD community!! The $25k matching...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
Running Vines Winery in Chesterton, IN hosted a fundraiser and awareness event in honor of ECD patient, Hank during Rare Disease Day weekend. They provided live music, food, and ECD awareness shirts and hoodies for purchase. After advertising in the community and...
