My family gives me a lot of emotional support with ECD and the accommodations I need. My response to treatment brings me a lot of hope, as when I first received Zelboraf, I felt immediately better. Along with the research being conducted on a rare disease.
Search Our Blogs
Recent Posts
- Erdheim-Chester Disease Global Alliance 2025: The Year in Review
- Final Reminder: February 1 Deadline for Registration, Abstracts, Awards, & Financial Assistance
- Final Reminder: February 1 Deadline for Registration, Awards, Patient Posters & Financial Assistance
- Join Us for the 2026 ECDGA Patient & Family Gathering in Birmingham, AL, Early Bird Deadline February 1, 2026
- The Strength of Support: How the ECDGA Support Network Empowers the ECD Community

