Running Vines Winery in Chesterton, IN hosted a fundraiser and awareness event in honor of ECD patient, Hank during Rare Disease Day weekend. They provided live music, food, and ECD awareness shirts and hoodies for purchase. After advertising in the community and online, they had a terrific turnout. In addition, the winery donated a percentage of all the wine sales to the ECDGA in Hank’s honor. Much ECD awareness was raised in addition to donations that were awarded to the ECDGA!
Be Brave with Hank
