Hope springs from the dedication of doctors tackling my condition and the collaborative spirit among my medical team, all committed to understanding ECD. Their efforts, coupled with positive treatment responses, fill me with gratitude. Additionally, the support from the ECDGA and our community uplifts my spirits, reinforcing the belief and progress and a brighter future.
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- Join Us for the 2026 ECDGA Patient & Family Gathering in Birmingham, AL, Early Bird Deadline February 1, 2026
- The Strength of Support: How the ECDGA Support Network Empowers the ECD Community
- 2026 ECDGA Medical Symposium in Birmingham, AL, Early Bird Registration Closes February 1, 2026
- Erdheim-Chester Disease Global Alliance Announces Jerome Henson as Executive Director
- 2026 ECD Global Alliance Award Nominations Now Open

